Author/Authors :
Safdari, Reza Health Information Department - Health Information Management Research Center - School of Allied Medical Sciences - Tehran University of Medical Sciences, Tehran, Iran , Firoz, Alireza Center of Research and Training in Skin and Leprosy - Tehran University of Medical Sciences, Tehran, Iran , Masoorian, Hoorie School of Allied Medical Sciences - Tehran University of Medical Sciences, Tehran, Iran
Abstract :
Background: Psoriasis is a complex disease with lifelong emotional and social consequences for affected patients. It also reduces
the patients’ quality of life and requires a long-term management. Therefore, in addition to appropriate treatment of the disease, selfmanagement
strategies to improve patient health and quality of life are essential. On the other hand, smartphone-based applications
alter the way people interact with health care and public health systems. This study aimed at identifying training and informational
components to develop a psoriasis self- management application.
Methods: This descriptive-analytic study was conducted on 100 patients with psoriasis and 26 dermatologists who were selected
randomly, using Morgan table. The data were collected using a researcher- made questionnaire, which included demographic and clinical
information, lifestyle training and management, and application capabilities in psoriasis self-management. A group of experts and
a test-retest method were used to confirm the validity and reliability of the questionnaire, respectively.
Results: The mean scores for demographic and clinical information, lifestyle training and management, and application capabilities
in self-management were 80.55%, 85.7%, and 88.8% from the patients’ perspective, and 83.7%, 71%, and 75% from the specialists’
viewpoint, respectively.
Conclusion: Determining self-management components by patients as persons who are suffering from the disease and physicians as
specialists in the field will be helpful in efficient psoriasis self-management. It is more likely that self-reliant patients, who are aware
of the benefits and risks of their disease management application, will follow their treatment plan and pursue the management of their
disease more seriously.