Author/Authors :
Ghaffari, Shakiba Physiotherapy Research Center - Department of Occupational Therapy - school of Rehabilitation - Shahid Beheshti University of Medical Sciences, Tehran , Kalantari, Minoo Department of Occupational Therapy - school of Rehabilitation - Shahid Beheshti University of Medical Sciences, Tehran , Rezaee, Mehdi Department of Occupational Therapy - school of Rehabilitation - Shahid Beheshti University of Medical Sciences, Tehran , Akbarzadeh Baghban, Alireza Proteomics Research Center - Department of Biostatistics - School of Allied Medical Sciences - Shahid Beheshti University of Medical Sciences, Tehran
Abstract :
Objective
The aim of this study was to test a model of child, family and
environment and identify factors affecting the intensity of leisure
participation by children with cerebral palsy (CP).
Materials & Methods
In this cross-sectional study, 232 children with cerebral palsy (141 boys
and 91 girls), aged 6 to 14 years old and their parents were selected
from four schools of children with special needs and five rehabilitation
centers through the convenience sampling method in Shiraz, Iran. To
evaluate the intensity of leisure participation, we used the Persian
version of Children’s Assessment of Participation and Enjoyment
(CAPE) completed by the participants. Demographic form, Craig
Hospital Inventory of Environmental Factors (CHIEF), Strengths
and Difficulties Questionnaire (SDQ), Family Environmental Scale
(FES), SPARCLE cognitive level and parents’ version of Gross Motor
Function Classification System, Manual Ability Classification System
and Communication Function Classification System were sent to
the parents with some necessary explanations. Structural equation
modeling was used to test the model hypothesis. SPSS version 18 and
AMOS version 16 were used for data analysis.
Results
Comparative fit indexes indicated a moderate to good model fit. The
presented model explained 44% of the variance in the intensity of
participation. Constructs such as Family Activity Orientation with
standardized total effect of 0.31 and path coefficients of P< .05
showed the most significant direct effect on participation, followed
by higher gross motor function (-.26), higher manual ability (-.19), communication function (-.17), higher cognitive level (-.16), more
siblings in the family (.15) and less emotional-behavioral problems
(-.15). Family structures and relationships (.17) and unsupportive
environment constructs (-.14) demonstrated an indirect but significant
effect (P< .05). The relationship of family education level and income
with participation was not significant (P>.05).
Conclusion
The intensity of CP children’s participation is influenced by child,
family and environmental factors. Parents’ knowledge of recreational
activities and their preference to participate in leisure and recreational
activities provide children more opportunities to participate. Higher
gross motor function, manual ability, and communication function also
play an important role in their participation. Family structure means
family cohesion, roles organization, and conflicts between family
members and encountering physical, attitudinal and structural barriers
at home and community indirectly impact children’s participation
pattern. To enhance children’s participation, we suggest therapists to
support children’s behaviors, family relationships and involvement in
community activities and optimize physical function of children with
limitations in self-mobility.
Keywords :
Participation , Leisure , Cerebral Palsy , Structural Equation Modeling