Title of article :
Understanding Ethical, Legal and Societal Issues (ELSIs) in Human Biobanking and Genomics for Research and Healthcare in Zimbabwe: The Genomics Inheritance Law Ethics and Society (GILES) initiative
Author/Authors :
Matimba, Alice College of Health Sciences - University of Zimbabwe, Harare, Zimbabwe , Chimatira, Andrew College of Health Sciences - University of Zimbabwe, Harare, Zimbabwe , Kuguyo, Oppah College of Health Sciences - University of Zimbabwe, Harare, Zimbabwe , January, James College of Health Sciences - University of Zimbabwe, Harare, Zimbabwe , Mupambireyi, Zivayi Centre for Sexual Health and HIV Research Zimbabwe (CeSHHAR Zimbabwe), Harare, Zimbabwe , Marimbe-Dube, Bazondlile College of Health Sciences - University of Zimbabwe, Harare, Zimbabwe , Chikwasha, Vasco College of Health Sciences - University of Zimbabwe, Harare, Zimbabwe , Nyati-Jokomo, Zibusiso College of Health Sciences - University of Zimbabwe, Harare, Zimbabwe , Muteti, Shamiso College of Health Sciences - University of Zimbabwe, Harare, Zimbabwe , Mangezvo, Pedzisayi Faculty of Health Sciences - Africa University, Mutare, Zimbabwe , Kangwende , Abigail Faculty of Health Sciences - Africa University, Mutare, Zimbabwe , Chingono, Alfred College of Health Sciences - University of Zimbabwe, Harare, Zimbabwe , Chidzonga, Midion College of Health Sciences - University of Zimbabwe, Harare, Zimbabwe , Gandari, Jonathan College of Health Sciences - University of Zimbabwe, Harare, Zimbabwe , Hakim, James College of Health Sciences - University of Zimbabwe, Harare, Zimbabwe , Nathoo, Kusum College of Health Sciences - University of Zimbabwe, Harare, Zimbabwe , Samkange, , Christopher College of Health Sciences - University of Zimbabwe, Harare, Zimbabwe , Mangezi , Walter College of Health Sciences - University of Zimbabwe, Harare, Zimbabwe , Lee, Sandra Biomedical Ethics - Stanford University School of Medicine, Stanford, CA, USA , Gwanzura, Lovemore College of Health Sciences - University of Zimbabwe, Harare, Zimbabwe , Cho,, Mildred Biomedical Ethics - Stanford University School of Medicine, Stanford, CA, USA , Gwanzura, Lovemore College of Health Sciences - University of Zimbabwe, Harare, Zimbabwe , Cho, Mildred Biomedical Ethics - Stanford University School of Medicine, Stanford, CA, USA , Ndebele, Paul Medical Research Council of Zimbabwe, Harare, Zimbabwe
Pages :
16
From page :
1
To page :
16
Abstract :
Biobanks and human genomics applications are key for understanding health, disease and heredity in Africa and globally. Growing interest in these technologies calls for strengthening relevant legal, ethical and policy systems to address knowledge disparities and ensure protection of society, while supporting advancement of science. In Zimbabwe there is limited understanding of ethical, legal, and societal issues (ELSI) for biobanking and genomics. The Genomics Inheritance Law Ethics and Society (GILES) initiative was established in 2015 to explore the current status and gaps in the ethical and legal frameworks, knowledge among various stakeholders, and to establish capacity for addressing ELSI of biobanking and genomics as applied in biomedical and population research, and healthcare. The project was conducted over a countrywide geographical region and established one of the most comprehensive studies for ELSI of human biobanking and genomics in Africa. This paper outlines the strategy undertaken during the implementation of the GILES initiative and discusses the importance of such an initiative for characterisation of ELSI of human biobanking and genomics in Zimbabwe and Africa.
Keywords :
biobanking , human genomics , human genomics , genomic research , ethics , ELSI , Zimbabwe , Africa
Journal title :
AAS Open Research
Serial Year :
2019
Full Text URL :
Record number :
2612517
Link To Document :
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