Author/Authors :
Agongo, Godfred Navrongo Health Research Centre, Navrongo, Ghana , Debpuur, Cornelius Navrongo Health Research Centre, Navrongo, Ghana , Amenga-Etego, Lucas West African Centre for Cell Biology and Infectious Pathogens - Department of Biochemistry - University of Ghana, Accra, Ghana , Nonterah, Engelbert A. Navrongo Health Research Centre, Navrongo, Ghana , Kaburise, Michael B. Navrongo Health Research Centre, Navrongo, Ghana , Oduro, Abraham Navrongo Health Research Centre, Navrongo, Ghana , Ramsay, Michele Sydney Brenner Institute for Molecular Bioscience - Faculty of Health Sciences - University of Witswatersrand, Johannesburg, South Africa , Tindana, Paulina Health Policy - Plannng and Management - School of Public Health - College of Health Sciences, University of Ghana, Legon/Accra, Ghana
Abstract :
Community and Public engagement (CE) have gained traction as an ethical best practice for the conduct of genomics research, particularly in the context of Africa. In the past 10 years, there has been growing scholarship on the value and practice of engaging key stakeholders including communities involved in genomics research. However, not much has been documented on how research teams, particularly in international collaborative research projects, are navigating the complex process of engagement including the return of key research findings. This paper is part of a series of papers describing the CE processes used in the AWI-Gen study sites. We describe the key processes of engagement, challenges encountered and the major lessons learned. We pay particular attention to the experiences in returning research results to participants and communities within the Demographic and Health Surveillance site in northern Ghana.
Keywords :
Community engagement , feedback of results , Ghana , genomics
