Title of article :
Development of Informative System of Autism Spectrum Disorders Registry in Iran: A Brief Report
Author/Authors :
Jenabi ، Ensiyeh Autism Spectrum Disorders Research Center - Hamadan University of Medical Sciences , Rezaei ، Mohammad Autism Spectrum Disorders Research Center - Hamadan University of Medical Sciences , Seyedi ، Mahdieh Autism Spectrum Disorders Research Center - Hamadan University of Medical Sciences , Bashirian ، Saeid Autism Spectrum Disorders Research Center - Hamadan University of Medical Sciences , Zareian ، Sepideh Department of Infrastructure Information Technology - Hamedan University of Medical Sciences , Khazaei ، Salman Modeling of Noncommunicable Diseases Research Center - Hamadan University of Medical Sciences
Abstract :
Background: The registry will provide adequate motivation for researchers to conduct various studies in numerous fields of medical and neuropsychological sciences. Objectives: Up to the present, no registry system for autism spectrum disorder (ASD) has been developed in Iran. Therefore, the present study aimed at the generation of the protocol to develop an informative system of ASD registry in Hamadan, one of the western cities of Iran. Methods: Before conducting this protocol, screening of 18-month-old children for ASD was executed. A researcher-made questionnaire will be used for data collection. The Data Management website will keep under review all accomplished questionnaires through the registration process. Results: The developed registry system is a precious tool to survey ASD and accurately conceive the essence of the problem. In Hamadan, similar to other parts of Iran and on a larger scale worldwide, the number of children diagnosed with ASD is increasing. Conclusions: The essential services and facilities will be provided for children with ASD and their affected families through the obtained information from this registry system. In addition, the obtained data from a large population by the registry system for ASD will induce researchers to discover environmental and genetic contributions to the etiological components of ASD.
Keywords :
Autism Spectrum Disorders , Protocol , Registry
Journal title :
Zahedan Journal of Research in Medical Sciences
Journal title :
Zahedan Journal of Research in Medical Sciences