سفري همراه والدين كودكان ناتوان: از تشخيص تا تطابق

From Diagnosis to Coping: A Journey with Parents in the Course ofthe Disability oftheir Children

Objective: Th e aim of thi s stud y was to examine parentsʹ ex pe r ie nces, exp ectati on s, and needs re garding servi ce providers and their roles in the process of copping with a child with a disability. Materials & Methods: A qualitative phenomenological meth od has been de signed for th is study. Nine parents of children with variety of di sabil itie s incl ud ing children with cerebral pal sy, inte llec tual disab ilities, and autism were purposefully sele cted and semi-structured in-depth interview were conducted. Interviews records were trans cribed and analyzed using Van Maneriʹs method. Results : Findings were classified in four domains as ex perienced and per cei ved by the parti cipants of th e study : medi cal, con solin g, rehab ilitat ion and education services . Problems access ing information were due to interpersonal relationship skills, early diagno sis, and frank and honest communicatio n. Co nso ling are two fo lds supp ort and education. In rehabilitation prom ote (prog ress) of childʹs function, to possible of observation and compar ison with other children with similar si tuat ion and attitude of therapi sts were emerged. Education included : present and future. Conclusion: Findings indi cate that the families are faced with ongoing challenges when receiving profe ssional services. The se findin gs reveal ed that earl y d iagn osis and intervention, empathic relationships, and appropriate con sultation will help the par ents better cope with their children disabil ities and become more positively involved in the care and development of their children with disability.